Seeing is believing

Pompe’s disease patient Megan Crowley and her father, biotech CEO John Crowley, accepted an invitation to meet with Donald Trump and attend his speech on Tuesday to present the hopes and needs of the rare disease community to the president, and the challenges and possibilities of the biotech industry.

John Crowley, a serial entrepreneur who is chairman and CEO of Amicus Therapeutics Inc., told BioCentury he and Megan accepted the invitation to attend the president’s speech before Congress “to show an example of the best of biotech, of patient-centered medicine. Having Megan there, in ways you could never describe from the podium, shows why we are doing what we are doing.”...