BioCentury

PART 1

Rules of the Road

PART 2

Privacy, transparency and consent

PART 3

Criteria of demarcation

PART 4

Rethinking first principles

ARTICLE | Product Development

Privacy, transparency and consent

Back to School Part 2: Ensuring patients control their own data is the first tenet of the rules of the digital road

C. Simone Fishburn, Editor in Chief; Erin McCallister, Senior Editor; and Steve Usdin, Washington Editor
August 31, 2019 5:36 AM UTC

Patients need to control the use of their data. This calls for new policies on transparency and consent, and means establishing systems governing the ownership, collection and agency of those data.

Data privacy is probably the biggest flash point of the digital age. Who owns the data is only part of the issue -- who controls it is key. ...